Abstract

GARCIA RIOS, Cecilia Alejandra; RENGIFO TOSCANO, Diana Estefanía; MENA MALDONADO, Víctor Hugo  and  PEREIRA OLMOS, Hugo. Calidad de vida en familias con pacientes pediátricos discapacitados matriculados en una unidad educativa ecuatoriana. Rev Eug Esp [online]. 2020, vol.14, n.2, pp.1-10. ISSN 2661-6742.  https://doi.org/10.37135/ee.04.09.01.

Family structure and functioning can be affected by life cycle events or stressful ones. A cross-sectional study with a quantitative approach was performed, following a non-experimental correlational mode. The entire population made up of the 245 families with disabled pediatric patients, who attended an Ecuadorian specialized educational unit participated in this research. The data were collected from the application of the Family Life Quality Scale to individuals identified as heads of household (the pediatric patients of the families directly involved in any case were not contacted at any time, respecting the bioethical principles established in Ecuador. in relation to a vulnerable population). The dimensions with the greatest need for intervention due to having more than 50% of cases framed as critical were: family resources (75.5%), support for disability (68.6%) and health and safety (66.9%). The results of the statistical Odds Ratio test established that the variables: age, family type, educational level and socioeconomic level constitute risk factors for the family interaction dimension, as well as: degree and type of disability for the parental role and support for disability. The degree of disability, the level of education, degree and type of disability for family resources were established as a risk factor for the health and safety dimension.

Keywords : Quality of Life; Disabled Persons; Family.

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